Sunday, March 16, 2008

Testing my theory....

Most of you know that Ella has been diagnosed with Alopecia. She had been losing a lot of hair until recently..... it has been growing back! It was not noticeable unless you really knew it was there because it is on the back of her head. I first noticed it in August, as were getting ready to go to my girlfriends house for a party. I was putting Ella's hair in pigtails. This is what it looked like:




Not a big deal, but startling, nonetheless. I did some Internet research (don't ever do that, BTW), and came up with the conclusion that she had this thing called Alopecia and she was going to lose all of her hair (typical mom response, don't you think?!). I took her to the ped the next day and he confirmed my thoughts (the Alopecia part, although he wasn't hopeful about her future) and told me to go to a dermatologist. So, off we went and got the same answer, although this doc went as far as to say that because of her age and where the spots were she had a 75% chance of losing it all. Our next stop was Hopkins and they were a bit more hopeful. They gave me a prescription for a steroid cream and sent me on my way. To them, her prognosis was a positive one. I was now as confused as ever, but understood that's the way of the disease. There is no way to know or tell or determine what will happen next. Jon and I decided against using the cream. She can make that decision when she is older. The cream only encourages hair re-growth, it does not stop hair from falling out.



A few months later, in December, this is what her head looked like:






More hair had been falling out, but I noticed that it had happened a few weeks after she had had a fever (the week of Thanksgiving, to be exact). Then I got thinking about the first time I noticed the patch (and yes, back in the beginning of August I had noticed more hair than normal falling out as I brushed her hair in the morning but you have to know Ella's hair to realize how thick and adult-like it is. I thought it was her normal "shedding" time.) and remembered she had a fever back in mid-July. Both times the fever was a freak thing. It only lasted 8-10 hours and got really high with no other symptoms. Huh.......



This brings me to the current day where she is running a 102.2 fever. Poor thing, she is miserable! I almost hope my theory is wrong and that a fever is not jolting the disease, because her head now looks like this:



And her hair has been growing back quite rapidly!

So, can you all please say a quick prayer for her? I know this is going to be a life-long thing for her and I've already given this whole thing to God and am comforted to know that He is in control. That being said, we all know God wants us to come to Him with our troubles, and so that's what I'm doing. It makes me feel so good when I can go to Him and lay it all down.

6 comments:

Jen said...

Jenn, I had no idea about this! I am so glad to see new hair growing and I will be praying that those "human" doctors are wrong because we know our God is so much bigger than alopecia! Hope Ella is feeling better!

Katie said...

Will say a prayer for her right now! She looked beautiful yesterday and wouldn't even know she had a problem!

Amy said...

I am so glad that Ella's hair is growing back in. I will continue to pray for her and that this fever is not connected to the hair loss!

Rachel said...

I will pray too.

Kathi said...

I will pray for her right now, Jenn. Thanks for updating us.

Not_So_Tiny_Tim said...

Hey Jen,
Just wanted to let you know we are praying for Ella. Keep us updated on how it is going.